Today, Marian at Different Thoughts talks about a movie that’s right up my alley. As always, I wrote a lengthy comment, but then decided it was unfair to place so much text on her site. So I’m posting the bulk of my thoughts here. It gets the really long post I did yesterday away from the top slot, in favor of something short enough that it might actually be read.
Her topic is a film called The Doctor Who Hears Voices. It is the story of a British physician with auditory, persecutory hallucinations. She gets treatment from a psychologist who forgoes drugs in favor of conservative management, including direct engagement with the internal voices.
One point the film makes clear to me is that every case of mental illness is unique. Some who hear voices can learn to cope with them the way most people tolerate negative ‘self-talk’. There may also be those who really need help with pharmaceuticals. At the same time, there are probably doctors with psychiatric problems who should be barred from practice permanently, but there are others who just need to take a break until things settle down. After that they can return to patient care, and bring their experience of real-life hardship to bear on the suffering of those who come to them for help. (For the record, I have abandoned all intention to return to practice, though without doubt I could do it safely and well.)
Many people in our overcrowded culture are not comfortable making such distinctions, or trusting others to do so on their behalf. Evidently, it is easier to simply hear the term ‘mentally ill’ and conclude the person must take powerful drugs, and be removed from all positions of responsibility. (In my post yesterday I wrote about how much society mistrusts the mentally ill.) On the other hand, it is just as facile to decide, on behalf of every psychiatrically disordered patient, that medications should never be given, reasoning that they just cause people to become ‘dumb and stupid’ (the description used by the psychologist in the movie).
Ideally, we would have assessment tools that would allow us to distinguish different situations, and decide (for instance) who requires medications, or who can prudently work as a physician. However, at present no such prognostication is possible. Or perhaps that’s to the best; maybe we need to encourage each person to make their own best choices. Perhaps if we provided ways for people to apply their unique qualities productively, there would be no need to lie on job applications, as the film seems to advocate. I don’t blame Ruth (the physician in the film) for hiding the extent of her symptomatology, by the way; I know firsthand the terror of believing your career as a physician might end. But it would be nice if she could be honest, still practice within her capability with available help if the voices become too intrusive. That would be better than my fear that she might push herself too hard and keep seeing patients at times when she is too distracted to make good clinical decisions. (Of course, you don’t need to be mentally ill to get too distracted to practice optimally.)
In the end, the best short-term answer is education. Each person with psychiatric symptoms deserves to know all options, to talk with people who’ve tried different approaches, and make their own best decision. Medications can sometimes provide the breathing space to learn about one’s dilemma and decide how to go forward in life. This needs to be respected as a valid path, but it should be followed by help and encouragement with tapering off the drugs. Some people elect to stay on pharmaceutical agents long term; they should be be guided toward the minimum number of pills required to keep them functional. We in the consumer community should be supportive of those who decide on that route, and understand that for some medications may be required for a satisfactory life. And there will be those like Ruth who select an alternative track. It is important that the treatment community learn to believe that such progress is possible, and not insist that medications are the only responsible option.
This film is a step in the direction of showing people different possibilities. I would happily play it for someone newly diagnosed with a psychiatric illness, to show one justifiable way to go. I would also emphasize that other choices are equally valid, and that there is no approach that suits everyone. Each person’s illness is unique, and everybody has their own value structure and preferred ways of solving problems. What needs to be avoided, at all cost, is imposing a monolithic strategy on everyone. Unfortunately, things are kind of like that right now. Few patients with psychiatric illness are given any choice in what approach they want. Most are just put on the standard pharmaceutical cocktail, and labelled ‘noncompliant’ if they deviate from it.
But the other side can be a little oppressive too. There is so much free-floating anger about medications coming from those that oppose them, that I have to fight hard not to feel bad about myself because I am still taking drugs. I feel awful enough about the shattering side effects (which as I’ve hinted before I hope to some day have the courage to write about), without also being told that it is wrong to take drugs at all. Even with all my bad experiences, I think it is important to reman open minded about medications. At the very least they can be helpful in the short term, and I seem to still require them to remain more or less comfortable.
I am glad Different Thoughts directed me to this movie. I learned about another mentally ill physician, and saw an example of how even severe psychiatric symptoms can be accommodated without medication.
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Gianna at http://bipolarblast.wordpress.com/
Will,
you should check out Take These Broken Wings…
I don’t think Ruth is an oddity…we just don’t give people what they need to heal.
http://bipolarblast.wordpress.com/2009/01/15/take-these-broken-wings/
have you checked out the recovery from extreme states tab on my blog??
I’m not convinced most people need drugs…I think it’s really a tiny fraction. Do you know Soteria?
http://www.moshersoteria.com/soteri.htm
they only used drugs in 3% of cases and only SHORT TERM.. most people just worked out there psychosis…there is a book entitled Soteria if you want more info…it’s available at Amazon.
I also recommend Mad in America by Robert Whitaker…his book that comes out next year provides even more damning documentation against drugs…
have fun!
Posted at July 13, 2009 on 3:33pm.
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Will at http://willspirit.com
Thank you, Gianna. I appreciate the suggestions; I am really trying to play catch-up, looking for mental health blogs and other sites of importance. It will take me a while to figure all this out. Right now, I truly can’t say how many people need drugs. I’ve seen quite a few ‘patients’ receive them and look like they got better (for a period of time I was interning as a patient’s right’s advocate, plus I have my exposure during medical school, and my times as a patient on the psych ward to draw on), but I have not seen very many people get treated in other ways. So when you come right down to it, for all I know the people who took the drugs would have improved anyway. Certainly the scientific data for the effectiveness of pharmaceuticals does not suggest they are miracle ‘cures’.
Posted at July 13, 2009 on 5:00pm.
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Gianna at http://bipolarblast.wordpress.com/
Are you aware I was a social worker in mental health for over a decade…I’ve seen what drugs do too…both to me and my clients. I saw a lot of people lose their souls while we told each other it was necessary and we believed it. That’s what I saw. Now I’ve seen that it’s a lie.
Posted at July 13, 2009 on 5:40pm.
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Will at http://willspirit.com
Thank you for helping me understand where you are coming from. I am glad to learn of your background and knowledge. I wrote another really long essay on this subject just now, then decided against posting it. I am trying to keep a broad perspective, but find it hard because feelings run so very strongly on all sides. That was the gist of my long essay, but I don’t want to give the impression that I don’t respect your work and your opinion. I do. My own experiences with the medications have been almost entirely negative. I guess it is my medical indoctrination that makes me hold on to the possibility that the drugs have value. I suppose, to be honest, I am also afraid of facing the fact that the injury I suffered happened without any benefit to me at all. It’s easier to believe the drugs were helping and had side effects, than to believe they did nothing but destroy my body.
Posted at July 13, 2009 on 7:17pm.
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Marian at http://diffthoughts.blogspot.com
Me too, I managed to write what amounts to a thesis in reply to your post above… So I posted it on my blog, here. I hope, it makes some sense (and isn’t all too “radical”)…
Posted at July 13, 2009 on 10:34pm.
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Gianna at http://bipolarblast.wordpress.com/
I understand not wanting to face that possibility…it tends to result in crippling rage…but I trust that it will resolve itself…
I think you should post what you wrote…work it out…it doesn’t matter what we think…this is what I suggested you do…write from the heart…you don’t have anything to fear from me…I’ve been just where you are…and I have many friends who still embrace meds…I’m not nasty and judgemental and I’m also pro-choice…
there are times when the suffering is so severe I don’t question someones right to put an end to it…including my own…people tend to imagine I don’t support any drug use ever and that is not the case.
we need a new infrastructure of care, until we have one drugs are sometimes necessary
Posted at July 14, 2009 on 9:41am.
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Will at http://willspirit.com
Thanks, as always. I looked for what I wrote as my first response, but cannot find it. I am usually a little better about saving text (I am always so impressed by the things I write
). I doubt it would have been offensive really, to the extent I can remember it. It’s just that sometimes I write so much in response to fairly concise comments, that I wonder if it sounds like I’m trying to be argumentative. Mainly, I just suffer from a ‘prolix writing style’ (the exact words used by one of my english professors in college). I am glad to know you are open-minded. I imagine there is a lot less judgment than I fear out there. I am just entering this world, I suffer from chronic feelings of inferiority, and it is easy to believe I will be looked down on for a) coming from the medical establishment and b) not fully embracing the no-drugs philosophy. Those are my issues, of course, and not a reflection on what other people actually feel. In truth, I doubt people much care what my take on things is. But I remain fearful, and because that’s where I currently am, I put it out there. I appreciate your encouragement to do so.
Posted at July 14, 2009 on 10:01am.
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Will at http://willspirit.com
In addition to posting my response as today’s ‘essay’, I also changed my description of myself (in italics under WillSpirit) from ‘psychiatrically abnormal‘ to ‘psychiatrically atypical‘ in honor of your philosophy.
Posted at July 14, 2009 on 10:04am.
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Gianna at http://bipolarblast.wordpress.com
oh no, there IS lots of judgment out there…so much that I get pretty much daily hate mail and so much that right now I’ve shut down my blog, but I also have more traffic than virtually any mental health blog and it took a long time to develop so many haters. I ignore them and delete their mail so no one ever sees it, but unfortunately I do and right now it has me shut down. But I’m not a hater and I love it when people with differing ideas can communicate….that is a lovely thing…and one of my favorite things the internet has brought me is relationships with other open-minded people who DO NOT agree with me AT ALL…and yet we’ve found ways in which we still relate.
Anyway, I’m not sure how long I’m staying shut down….I’ve closed all comments and all that is going up on the site are pre-scheduled daily quotes…
I’m not checking any other blogs (save yours because I checked for a response to my comment and you’re outside the realm of blogs that know me)
I’m not accessing my email or my reader. I’m in hiding.
I don’t know if you know, but I’m grossly ill due to the detox. And withdrawal from benzos brings hypersensitivity among all sorts of other horrible side-effects. anyway, this hiding faze may pass, or it may not…I’ve been doing my blog almost 2 years and I’m sorta sick of it…or literally sick. I don’t have the energy for hundreds of emails a day right now.
peace to you.
Posted at July 14, 2009 on 11:24am.
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Will at http://willspirit.com
I am so sorry that this is happening to you, Gianna. I hope you recover from the detox before too long. Every time I reduce a drug it takes weeks to regain my equilibrium, and it sounds like you did a much more rapid discontinuation.
It is terrible that people have been abusive toward you. We just say our opinion, which we do have a right to, and it is unfair that people have ventilated their aggression against you. I am, as you know, just getting started. So I’m happy when I get two emails a day. I can’t imagine getting hundreds, and it would be very hard if a lot of them were hostile. The feelings are so explosive around this topic that I question how involved I’ll really get. Especially since I’m not even sure what my opinion is, at this point!
I understand your need for a break. It pleases me that I was able to ‘meet’ you before you stepped off the stage. I hope you come back soon, if that is right for you. If you decide your road goes another direction, I wish you the very best. Finally, if you want to stay in touch with me I would more than welcome it. I understand, of course, that you must have many people you communicate with, and probably don’t need another. But the invitation stands.
Take care.
Will
Posted at July 14, 2009 on 8:47pm.
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Gianna at http://bipolarblast.wordpress.com
no I DID NOT DO a rapid discontinuation I took 6 f’ing years.
my blog is about how to do a slow and safe discontinuation…check out my about page if you have not done so…
unfortunately some people can do a detox all right and still suffer from what is probably mytochondrial damage…I’m physically disabled not mentally. But I was on astronomically high doses of neurotoxins for 20 years. THIS IS WHAT DRUGS CAN DO…
I’m one of the subjects in Whitakers next book showcasing these problems. I’m hardly the only one…we just aren’t printed up in the psychiatric times.
Posted at July 15, 2009 on 5:22am.
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Will at http://willspirit.com
I apologize for the assumption. I have looked at some of your past pages, including where you described your initial diagnosis in Berkeley. I’m not sure how I got to that page, but it was very interesting, especially as I was in Berkeley more or less the same time. I am not having the withdrawal problems you’ve experienced, but I have my own hellish issues around what the meds have done to me. So I understand you’re feelings about the drugs. My particular side effect hasn’t been written up either, though the drug companies and FDA could have anticipated it from the results of the animal studies they carried out. They just did not bother to see if the same problem happened in humans. I will look at your ‘about’ page; I have so much I’m trying to catch up on, with so many blogs, books, etc… Thank you for helping bring me up to speed.
Posted at July 15, 2009 on 7:05am.
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Gianna at http://bipolarblast.wordpress.com
no need to apologize…
I do think I’m done though. I’ve put my real email address in the email box if you want to stay in touch. I do visit the bay area when I’m well.
I do think the blog is over.
I’ll leave it up because it’s a massive resource…and perhaps when I’m well I’ll come back and do something with the content under my real name.
I’m done with Gianna though.
Posted at July 15, 2009 on 8:31am.