Two hospitalizations in the past ten days have updated my views on modern medical treatment. As a physician who used to practice a standard (albeit obscure) specialty and now provides acupuncture services, I interpret events during my inpatient stays from a unique perspective. As you read the following critique of inpatient care, keep in mind my past sufferings with awful medication side effects, and the fact that I’m currently sitting in a cramped and ugly hospital room.
Skeptics dismiss acupuncture as a ‘mere’ placebo. Although reams of research demonstrate that people improve after treatments, the mechanism remains uncertain. Relevant neural pathways seem to be altered, but these changes can be subtle and may not suffice to explain acupuncture’s effects. Bodily energy (Chi) remains a possible agent, but since it has not yet been proven to exist, it cannot be invoked in a Western context. In short, the data establish that people feel better after acupuncture, but there remains much mystery. It may well be true that much of the improvement is due to placebo action.
Here is my preferred definition of the placebo effect: the triggering of the body-mind’s innate healing response by an external signal. This description is broad enough to encompass sugar pills, hypnotic suggestions, and hugs. The unifying factors are trust, intention, and expectation. If a respected physician prescribes a pill and calls it potent medicine, the chance of improvement is high. This is true whether the pill contains a sophisticated drug or only sugar. (Pharmaceutical researchers often find it difficult to prove that a medication works better than sugar.) Recent work shows that patients may even feel better after knowingly taking inert pills, if they are assured that healing will follow.
Notice that context matters, and that trust is a big part of it. Hugs make us feel good, but not if offered insincerely or by those who abuse us. In a hospital, trust gets fostered by personal attention, smiles, and small acts of kindness. As a patient, you’d like the staff to ask how you feel while looking you in the eyes with genuine interest. You’d like to see a warm smile on the face of the person checking your vital signs. You’d like your nurse to notice if the room feels chilly and bring you a warm blanket.
Although I experienced each of these gestures during my hospitalization, I regret to report that they were rare. Usually, questions about my status were asked as the nurse faced his or her mobile computer cart. Blood was often drawn grimly by technicians who said few words and hardly looked at me. I had to ask for blankets repeatedly, even when being wheeled through drafty public corridors, where the need for coverage seemed obvious.
On a clinical pod of ten rooms containing fourteen beds, I counted two dozen computer screens. At any given time, nearly all the nurses and aides were working on computers rather than caring for patients. Even when they visited my room, which happened rarely, they spent most of their time entering data and asked only those questions mandated by the online forms. I was treated like a mechanical device in a repair shop rather than a flesh and blood human in a center for healing.
In my acupuncture office I keep the surroundings comforting and calm. Meditative music plays in the background and art adorns the walls and shelves. In the hospital the corridors were painted institutional green. There was no music and only a few token photographs. The background noise consisted of a near-constant cacophony of beeps and alarms emitted by all the technology. I didn’t see a single houseplant.
Don’t get me wrong. Sterility of equipment and surfaces is vital in a hospital. But does that require a sterile ambiance? Professionalism is important too, but does it rule out humanism?
Once after midnight I rang the call button. A young man barged into my darkened room and immediately turned on the brightest overhead light. When I told him I had abdominal pain he asked sarcastically, “so you’re having gas?” Worse, he didn’t seem phased by my response: “No, I have internal bleeding.” He simply stalked out of the room to summon the medication (and would have left the light glaring if I hadn’t stopped him).
This wasn’t an isolated incident. To cite one other example: when I was in the ICU I needed the nurse’s help to reach the nifty toilet that rotates out of a cabinet next to the bed. When I asked for assistance onto the commode, she suggested: “can’t you use a urinal?”, which forced me to spell out my bodily need so she’d see that her solution wouldn’t work. After I was in place and she left me to my business, she failed to close the curtain across the glass wall separating my room from the corridor. She expected me to defecate in full view of all the staff and visitors walking by.
I could go on, but you get the picture. This experience wasn’t healing, it was exasperating. At least the doctors seemed highly competent, though they failed to communicate a unified message and often contradicted one another. On the one hand, I was glad of my medical training, since it helped me sort out my options in a confusing situation. On the other, I was saddened to see how hospital care has deteriorated. Apparently, many young people entering health fields have neither empathy nor sense of mission. Computers win more attention than patients.
We hear a lot about evidence-based medicine. It is a good idea, but let’s add in a little placebo-based healing, too.
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Dave Moss at http://YourWebsite
Nice blog Will — I think you should send this blog to Hospital administrators, newspapers, health and wellness journals? You may have found a another career consulting with Hospitals? They need help with training staff and creating a healing environment!! Oh my, I get so frustrated and angry sometimes at our medical culture. I suspect most of this computer behavior is driven by insurance mandates and fear!! Dave
Posted at January 28, 2012 on 10:01am.
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Jill at http://YourWebsite
I’m writing from Australia and our hospitals though still not perfect seem to be better. We have the choice of a public system and a private system. And we have the plants, the pictures, (art collections actually) the cafes, the comfy seating and some really nice nurses in our public hospitals. Having lately spent a night in a private clinic following a suicide attempt I was stunned at the level of care, follow up and facilities. It costs me $250 for the night. My occasional visits to a psychiatrist cost me a $80. It would have been virtually free had I gone public and maybe not so pretty but still not what you describe. I am currently doing a mindfullness course with the clinic which thanks again for my private cover is free. I dont understand why health care is not equal around the world. Like education you have to wonder why it is so hard to get it right. Have you seen the documentary by Mike Moore called Sicko. that is amazing for showing different medical systems around the world.
Posted at January 29, 2012 on 3:40am.
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Brenda Marroy at http://brendamarroyauthor.com
As someone who regularly gets acupuncture treatment along with deep tissue massage, I don’t think it is a placebo at all. I’ve actually experienced healing of maladies in different areas of my body that I had not even discussed with my acupuncturist. Opening the flow of chi on a regular basis seemed to do the trick.
On another note, hospitalization can be a daunting experience. Unfortunately, I don’t know that we can teach people to be caring and compassionate. We can teach them the tools, but either they are or they aren’t. What do you think?
I hope you’re feeling better Will and that you’re getting some answers.
Posted at January 29, 2012 on 11:34am.
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Elaina ~ complex-post-traumatic-stress-disorder.com at http://complex-post-traumatic-stress-disorder.com
Two nights ago I was lying in the back of an ambulance being rushed to the nearest hospital, which was over 70 miles away from where I was when the EMTs picked me up. I was so freaking SCARED!! I’m not very much afraid of dying, I just don’t want it to happen NOW, nor to I wish to be awake and aware when it does happen.
There’s nothing like a near near death, to make you take stock of your life. Everything narrows down to the most important things… the ones I love… and the condition of my soul. Is there anyone I’ve wronged, that I need to make right, before it’s too late?
I caught myself praying, asking forgiveness for my sins, saying “I didn’t want to sin.” I immediately corrected that to a more honest: “Well, OK, I WANTED to sin… please forgive me for that.”
I was thinking of you, of your present ordeal, two nights ago when my world suddenly turned upside down. We were sitting in a restaurant, my loving husband and I. I had just finished my hamburger, and was drinking a milk shake. Suddenly, I realized that I was bleeding profusely inside my throat. I had no idea why. I’m still not sure why. But the bleeding has stopped, now. I’m home, now. Trying to believe it won’t happen again.
When something suddenly, unexpectedly goes very wrong in your body, it’s scary. Lonely. Dehumanizing. We become small and helpless.
When the medical workers treat us like things, the alienation we feel from our own humanity can be overwhelming.
Posted at January 29, 2012 on 10:01pm.
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mary at http://YourWebsite
Will,
Your experience spoke to many. My husband was in the hospital last week with chest pain. Being a 6ft 5″ man at 280 lbs, I asked if they had a bed that he wasn’t hanging off of on every side. They said no. I asked how they accomodated obese people and they chose not to answer me. This was followed with stoned faced, over tired and impatient interns poking and proding the poor man who’s blood pressure reflected the impact of these interactions throughout his stay.After they ruled out heart trouble,because of the way he was treated I checked him out to care for him at home . I agree with you wholeheartedly that a kind word or touch will positively effect the healing process . I saw this first hand watching the blood pressure monitor! My heart goes out to you in your time of need.
Take care,
mary
Posted at January 30, 2012 on 10:50am.
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Will at http://willspirit.com
Mary–Sorry to hear about your husband, and glad they ruled out heart disease. Although some health care workers manifest a caring ethic, many act like they might just as well be working at a supermarket. Your observation of the BP changes according to how he was treated is interesting; it’s a good sign of the way this sort of treatment works against health and not toward it. Thanks for the comment.
–Will
Posted at January 30, 2012 on 12:33pm.
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Will at http://willspirit.com
Elaina–
Your description resonates with my own recent experience. Funny how life looks so much more precious and our actions so much more significant in the face of life-threatening illness. One doesn’t need to feel fear around death to understand its implications about life. I, too, have found myself facing myself and creation with a higher standard of honesty and humility. Thanks for sharing your story. I trusty you well, now?
–Will
Posted at January 30, 2012 on 12:39pm.
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Will at http://willspirit.com
Brenda–
It’s not my opinion that acupuncture is only a placebo. On the other hand, placebo action is a good thing that doctors should use more often. It is true healing, not quakery. The only reason it’s gotten a bad name is because it causes problems in pharmaceutical research. From drug company perspectives, placebo action is nothing but a nuisance. But remember I defined it as a triggering of the body’s innate healing capacity. Thus, it is perhaps the best of all possible medicines: no toxicity, just pure restoration. The question is how to stimulate placebo action, and how to sustain it.
As for your other question, I don’t think it possible to teach people compassion. They can be taught simple acts of reassurance, but genuine caring must come from deeper sources. Sometimes empathy arises after a person faces a terrible illness or trauma of their own; I’m guessing I’ll be more sensitive to suffering myself after this ordeal.
Thanks for the comment,
–Will
Posted at January 30, 2012 on 12:48pm.
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Will at http://willspirit.com
Jill–
I’m very pleased to hear that Australian hospitals are so healthy. Maybe someday this country will regain its senses and move toward a more humane system of care.
Thanks for offering your unique perspective on this. I’ve been meaning to watch Sicko for some time; seems like now’s the time. Thanks for the comment.
–Will
Posted at January 30, 2012 on 12:51pm.
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Will at http://willspirit.com
Dave–
I do plan to expand and revise this piece and send it somewhere after my illness clears up. It doesn’t say anything other than the obvious, but the message needs repeating, apparently. It would be fun to get involved in some sort of health care reform, but I’d need to feel a bit more energetic than I have of late
Warmly,
–Will
Posted at January 30, 2012 on 12:53pm.
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Elaina ~ complex-post-traumatic-stress-disorder.com at http://www.complex-post-traumatic-stress-disorder.com
I’m doing well, thanks. How are you? I found your blog just a couple of days or so before your initial trip to the hospital in the bed of your pickup truck. I had only read a few of your posts and was feeling very glad to have found your wise and healing words, and then… internal bleeding? Unknown cause?? Though I had only just begun to know you through your writings, I felt concerned, and sad. I prayed for you. And then, a few days later, a similar event happened to me!
I read your 2 posts about your mothers. The empathetic pain I felt as I read those….. I can’t find the words.
~Elaina
Posted at January 30, 2012 on 6:28pm.
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Will at http://willspirit.com
Elaina–
Welcome to my blog. I’ve already responded to your later comments, but I want to express my appreciation of your readership. Your site looks great and I see that you’re just getting started with your blog. I’m sure you’ll find the process of online writing as valuable and uplifting as I have.
–Will
Posted at February 2, 2012 on 6:28pm.
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Maureen at http://YourWebsite
Dear Will, I am sorry to hear of the all the pain and suffering you’ve had to endure recently. I just read your past 4 blog posts, and I am feeling for you very deeply. I’ve had a chronic illness since 2004 — the kind doctors can’t figure out. I have relentless fatigue, flu-like symptoms, fever, etc. For 7 years I have tested IgM positive (active/acute) for three Mono viruses (EBV, CMV, HHV6). During this time I have seen hundreds of doctors and practitioners, both traditional and alternative. Hands down, the BEST and more CARING treatment comes from the holistic, alternative healers. In contrast, traditonal medical doctors have dismissed me, disregarded my symptoms and bloodwork, treated me like I was just some hysterical woman, and have shown no compassion or empathy at all. This also stands true with nurses and office staff. They treat people who are suffering like we are less than human. The holistic and alternative practitioners I’ve seen have ALL been compassionate, had never questioned the validity of my symptoms or suffering, and have all worked hard to find relief and answers. I wanted to share this with you to let you know that I don’t think you are being too hard on the hospital staff there. I know that being sick can cause regression and emotional pain — but I assure you, your perceptions and insights about the medical establishment are very accurate and not at all blown out of proportion. I send you healing thoughts, comfort, and great hope for better days ahead. Please be gentle, gentle, gentle with yourself (something I need to remind myself of all the time!). You deserve compassion and love during a time like this. You have a wonderful heart.
Posted at February 2, 2012 on 7:07pm.
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Maureen at http://YourWebsite
Dear Will, I am sorry to hear of the all the pain and suffering you’ve had to endure recently. I just read your past 4 blog posts, and I am feeling for you very deeply. I’ve had a chronic illness since 2004 — the kind doctors can’t figure out. I have relentless fatigue, flu-like symptoms, fever, etc. For 7 years I have tested IgM positive (active/acute) for three Mono viruses (EBV, CMV, HHV6). During this time I have seen hundreds of doctors and practitioners, both traditional and alternative. Hands down, the BEST and more CARING treatment comes from the holistic, alternative healers. In contrast, traditional medical doctors have dismissed me, disregarded my symptoms and bloodwork, treated me like I was just some hysterical woman, and have shown no compassion or empathy at all. This also stands true with nurses and office staff.
However, the holistic and alternative practitioners I’ve seen have ALL been compassionate, have never questioned the validity of my symptoms or suffering, and have all worked hard to find relief and answers. I wanted to share this with you to let you know that I don’t think you are being too hard on the hospital staff there. I know that being sick can cause regression and emotional pain — but I assure you, your perceptions and insights about the medical establishment are very accurate and not at all blown out of proportion. I send you healing thoughts, comfort, and great hope for better days ahead. Please be gentle, gentle, gentle with yourself (something I need to remind myself of all the time!). You deserve compassion and love during a time like this. You have a wonderful heart.
Posted at February 2, 2012 on 7:10pm.
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Maureen at http://YourWebsite
oops — it posted twice
. So sorry! (FYI — the second one is better because I edited it when the first one wouldn’t go through!).
Posted at February 2, 2012 on 7:14pm.